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Neonatal admission: what to expect?
What is preterm birth?
Neonatal care across the globe
Preterm birth: risk factors and causes
Modifiable lifestyle choices
Medical conditions
Sociodemographic factors
Preterm labour: signs and symptoms
Signs & symptoms
Prevention of preterm birth
Antenatal care and monitoring
High-risk pregnancy
How to prepare for the NICU
Clinic levels
Visit the neonatal unit
Connect with other parents
Pack your hospital bag
Find support
Delivery and neonatal admission
Vaginal delivery or caesarean section
Delivery of a preterm baby or multiples
Stabilisation and resuscitation
Immediate skin-to-skin care
Fathers’/partners’ role
Transfer to the NICU
Possible complications
Lung
Heart
Brain
Temperature control
Kidney
Digestion
Blood glucose
Infections
Another pregnancy
What is the NICU?
The parents' role in the NICU
Your role in the NICU
Feeding your baby
Changing your baby's nappy
Washing your baby in the NICU
Having a sibling in the NICU
Parenting multiples in the NICU
Support and self-care
In the NICU
NICU care team
NICU equipment
Tests and procedures
Feeding procedures
Vaccination
Uncertainty, loss, and bereavement
Making critical care decisions
Palliative care
Coping with loss
Coping with the loss of multiple babies
Preparing to go home
When can your baby go home?
Getting organised: what to expect
Checklist: Preemie clothing and supplies
Preparing siblings for the new baby
Transitioning from the neonatal unit to home
Preparing for discharge
Going home by car
Going home on oxygen
Follow-up appointments
Preemie care at home
Challenges & support
Feeding your baby at home
Bathing your preterm baby
Your baby's sleep
Signs that your baby might be unwell
Medical care and equipment
Suitability of the environment
Pets
Visits from family and friends
Follow-up care after the neonatal unit
Medical support when you come home
Early intervention
Immunisation
Stimulation
Physiotherapy and other therapeutic support
Preemie development
Adjusted age development
Preemie growth and weight
Preemie milestones
Preterm birth: long-term impact
Kindergarten and pre-school
Primary school and high school
Long-term health effects
Social experiences and relationships
Involving family and friends
Support groups and organisations
Coping with worry
How you might be feeling
What you can do to help
Follow-up visits after giving birth
Financial information
Child support
Maternity and parental leave
Health insurance and social services
Charities
Stories from our community
Downloads
Glossary
Parent Support Groups
Details
Parent support
Home  >  Parent support

Involving family and friends

Grandmother gently touching a newborn held by the mother.

Learn ways to keep loved ones informed and engaged in your NICU journey, helping them offer support during this time.

Support groups and organisations

Parents lifting their baby in the air, sharing a joyful moment.

Discover support groups and organisations dedicated to families of preterm or sick babies that offer help and community.

Coping with worry

Counsellor taking notes during a family support session.

Find ways to manage the stress and worry of having a preterm or sick baby in the NICU, with coping strategies and support.

Follow-up visits after giving birth

A doctor speaking with a smiling patient in a medical facility.

Read more about the importance of follow-up visits and check-ups after the birth of your baby. 

Financial information

Learn about the local financial resources available for NICU families, from child support to healthcare services.

Stories from our community

Twin girls with glasses laughing together outdoors.

Discover the experiences shared by others and gain strength from those who have been through it.

Downloads

Therapist observing a child drawing during a therapy session.

Access helpful resources and downloads to support you during your NICU journey, from checklists to guides.

Glossary

Mother reading a book to her baby while sitting on a sofa.

Learn key terms to better understand your baby’s care in the NICU, after discharge, and during follow-up care. 

The journey of having a preterm or sick baby can be filled with unexpected challenges – emotionally, practically, and financially. Finding the right support can make a world of difference during this time.

 

 Whether you are seeking support for emotional challenges, looking for resources to help manage day-to-day tasks, or simply needing to connect with others who understand what you are going through, support groups and organisations can offer much-needed assistance.

 

The information on this page was reviewed by Dr Tiffany Gladdis, Neonatal/ Perinatal Psychologist and Professor Dieter Wolke, Professor of Developmental Psychology and Individual Differences. Last updated in May 2025.
The information on this page was reviewed by Dr Tiffany Gladdis, Neonatal/ Perinatal Psychologist and Professor Dieter Wolke, Professor of Developmental Psychology and Individual Differences. Last updated in May 2025.

GFCNI

Global Foundation for the Care of Newborn Infants

 

GFCNI works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world.

 

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Imprint

Neopedia is your neonatal care encyclopedia about prematurity, hospitalisation, and beyond. 

 

Neopedia offers information and advice of a general nature, which are not a substitute for professional medical consultation or treatment by healthcare professionals. Always consult your healthcare provider for proper diagnosis and treatment. 

 

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