Support groups and organisations can provide valuable assistance for families going through challenging times. Whether you are seeking emotional support, practical advice, or help navigating the healthcare system, these groups can be a source of comfort, connection, and guidance.
There are regional, national, and international (NICU) parent organisations that offer a variety of resources. Some provide individual and group support both in person and virtually. Some organisations will get involved as early as while your baby is in the NICU and may follow you through discharge or even the baby’s first year or two of life.
Many hospitals have posters throughout the unit with information about these organisations. You can also ask a member of your healthcare team for information on how to access NICU parent organisation support or click the links above.
GFCNI
Global Foundation for the Care of Newborn Infants
GFCNI works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world.
Neopedia is your neonatal care encyclopedia about prematurity, hospitalisation, and beyond.
Neopedia offers information and advice of a general nature, which are not a substitute for professional medical consultation or treatment by healthcare professionals. Always consult your healthcare provider for proper diagnosis and treatment.
Neopedia is powered by
and unconditionally supported by
