Making critical care decisions feels overwhelming and devastating, especially when you are unsure about your baby’s condition. It is important to ask for support from your healthcare professionals when you are faced with a loss. Critical care decisions are not made alone by the parents but together with the support of care providers, such as the paediatrician⍰ or NICU team.

Parents might also want to talk to a bereavement expert, a spiritual leader, peer support group, or psychologist, depending on who is available and who they want to turn to. Open communication can help parents find comfort as they cope with the loss of their baby or babies.

It is normal to feel overwhelmed but remember that every decision is made with your baby's comfort and well-being in mind. Whether you decide to continue care or consider stopping treatment, your love and dedication to your child are clear.

Your baby’s condition can change quickly, and you might need to make decisions fast. But, when possible, take time to think, get more advice, and find support. You should never feel rushed into making a decision you are unsure about. There may also be moments when you disagree with doctors, nurses, or even your partner. Please remember that this is perfectly normal, and open discussions about your feelings and thoughts are essential. 

Getting as much information as possible can help you feel more confident about what is right for you and your baby. It is important that doctors and nurses talk openly with you, so you know what is happening and they understand your worries. It is okay to ask lots of questions, even the same ones over and over, until you really understand the situation. Take your time.

The knowledge and experience of the support staff, nurses, and doctors can be invaluable during this time. Your unit may have a counsellor available, and there should be spiritual support if you need it.