Getting involved: your role in the NICU
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You can do many things when your baby is in the NICU. You can be part of her or his daily routine, for instance. You can do skin-to-skin care. You can do breastfeeding. If your baby cannot breastfeed directly, you can pump your milk. And you can be there, just present next to the incubator…
Parent to parent advice from İlknur Okay. ©Neopedia

Most parents feel uncertain about how to support their baby in the neonatal unit initially. Taking an active role can bring positive changes for you, your baby, and your family. While it is okay to feel a bit unsure at the start, many families discover that getting involved is a process that builds confidence over time.

 

What is IFCDC/FCC?

 

IFCDC stands for infant- and family-centred developmental care, also known as family-centred care (FCC) or family integrated care in some countries. This approach supports your baby's development through more than just medical care and ensures that you and your baby are the centre of care.

 

It includes managing what your baby sees and feels, using techniques like specific holding and positioning, practicing skin-to-skin care, and actively involving parents in decisions about their baby’s care and treatment. Different countries may use slightly different terms, but the goal is always to support both the baby’s growth and the family’s role in their care.

 

How to create a supportive environment

 

Creating a nurturing environment for your baby's growth is a shared effort between the NICU care team and parents.

 

Using soft nests, comfortable positions, and carefully managing noise and light around your baby can help create a calm, soothing space. The NICU care team also work to align medical care with your baby’s natural sleep-wake cycles and to minimise pain whenever possible.

 

The goal of Infant- and Family-Centred Developmental Care (IFCDC) is for parents and the NICU care team to work together, providing an environment that supports your baby's healthy growth and development.

 

Preterm babies may encounter health challenges after they are born. Some may also experience delays in growth and development, especially those who are very preterm or have medical complications.

 

Your baby's development will be assessed regularly by healthcare professionals to make sure they are progressing well and to address any concerns.

 

Some babies may need extra support from a physiotherapist⍰ or occupational therapist⍰ to develop strength and muscle tension, get help with feeding problems and sensory problems. These therapists can show you gentle exercises or activities that you can help with at home.

 

If you have any concerns about your baby's development, discuss them with your NICU care team.

 

A timeline of how a baby's senses develop from 7 weeks to full term, including touch, taste, hearing, and vision milestones.
How your baby's senses develop. ©Neopedia

Around 7-8 weeks:

  • Sensitive to touch around the mouth.
  • Taste receptors on the tongue form.

Around 12-14 weeks:

  • Baby can suck their thumb.
  • Baby's hands start opening.

Around 20 weeks:

  • Hearing structures begin to develop.

Around 24 weeks:

  • Sensitivity to touch all over the body, especially the mouth.
  • Grasp reflex triggered by touching the inside of the hand.
  • Can taste flavours in the amniotic fluid⍰, influenced by the mother’s diet.

Around 26-27 weeks:

  • Reacts to bitter taste.
  • Begins to move in response to sounds.

Around 28-29 weeks:

  • Grasps with toes when the foot is touched.
  • Distinguishes sweet and sour tastes.
  • Recognises voices, especially low-frequency sounds.

Around 32 weeks:

  • Recognises the mother's voice.
  • Pupils constrict in response to light.

Around 34 weeks:

  • Prefers sweet tastes.
  • Recognises familiar sounds.
  • Starts to track moving objects or faces.

Around 35-40 weeks:

  • Recognises mother's voice, language, and speech pattern.
  • Fixes and follows moving objects in various directions.
  • Vision development accelerates after 40 weeks.

 

Signs that your baby is comfortable can include:

 

  • Calm and regular breathing
  • Normal oxygen saturation
  • Digesting food without discomfort
  • Gentle movements
  • Firm muscle tension (but not too tight)
  • Arms and legs folded towards body
  • Hands resting on face or head
  • Hands and feet brought together
  • Relaxed face
  • Sucking
  • Shiny, alert eyes or eyes closed

 

If your baby shows any of the signs below, they may be uncomfortable. You or someone from the NICU care team should make adjustments to help them feel more at ease. This could involve changing their nappy (diaper), ensuring they are positioned comfortably, feeding them, or adjusting the temperature, noise, or light around them. If you are unsure about their comfort or have any concerns, do not hesitate to speak with a healthcare professional for further support.

 

  • Changes in skin colour
  • Low or high heart rate
  • Rapid breathing; unregular breathing with pauses
  • Lower oxygen saturation
  • Vomiting (throwing up) or gagging
  • Hiccups
  • Sounds of regurgitation
  • Choking, burping,
  • Frantic movements, tremors⍰
  • Low muscle tension; loss of energy
  • Appears sunk into the bedding
  • Fingers or toes stretched wide; tight fists
  • Arching
  • Stiffness
  • Straining
  • Grimacing
  • Yawning
  • Looking away
  • Crying

For babies, adjusting to changes in temperature is not as easy as it is for adults. Babies born preterm often have very little body fat. When a baby's body temperature is too low, they use more energy and oxygen to stay warm.

 

It is important to keep your baby’s surroundings at the right temperature and ensure their skin stays dry and warm. After birth or a bath, using warm blankets and having skin-to-skin contact with a parent can help warm and dry your baby quickly. If you are unsure about keeping your baby warm, ask a healthcare professional for guidance.

Just like adults and older children, babies feel pain, and it is important to make sure they feel as little discomfort as possible.

 

Babies, especially those born early or sick, need extra care when they undergo medical procedures, like having blood taken or having surgery. Doctors and nurses have studied the signs of pain in babies and may use a checklist to track these. They can teach you how to look for the signs of pain your baby might show. If your baby seems stressed, there are many things healthcare professionals can do to help. This is especially true when preparing for certain procedures and they know that pain will occur.

 

They might change the environment by making it quieter and dimming the lights. They can also let your baby be close to you, engage in skin-to-skin care and breastfeeding, providing glucose (a form of sugar) to the baby, or let them suck on a pacifier⍰. Parents being there can really help and support the baby during and after a painful procedure. With the help of the NICU care team, parents can become experts in their baby’s behaviour and manage their pain and stress by comforting them and changing the environment. If your baby needs extra help, the NICU care team might give them pain-reducing drugs (analgesics) to make them feel better.

 

All these things are done to make sure your baby in the neonatal unit is as comfortable and content as possible, even when they need procedures.

Understanding your preterm baby’s muscle tension and positioning is an important part of their care. Because their muscles are still developing, preterm babies tend to have lower muscle tension than full-term babies. Gently helping them find comfortable positions supports the healthy growth of their muscles and bones.

 

Creating a "nest" using rolled-up sheets or blankets shaped into a wide, thick band around your baby can provide comfort. This setup gives your baby boundaries to touch, much like the womb⍰, which helps them feel secure and keeps their arms and legs in a supportive position – important for future milestones like crawling, standing, and walking. As much as the babies like nesting, this should only be used under adult supervision.

 

Good positioning can also reduce your baby's stress, improve their breathing and digestion⍰, and support healthy blood flow. If you have questions, do not hesitate to ask your NICU care team for guidance. 

 

Different lying positions for your baby:

 

Lying on the tummy (prone position)

 

  • May improve breathing, digestion, and sleep.
  • Used only in the hospital setting where babies are monitored and not recommended at home use due to the risk of sudden infant death syndrome (SIDS)⍰.

 

 Lying on the back (supine position)

 

  • Used when babies need close observation or at home for safe sleep.
  • Usually, caregivers support the baby's head, shoulders, and hips with additional pillows.

 

Lying on one side (lateral position)

 

  • Supports a flexed position with bent arms and legs, allowing the baby to adjust their own posture.
  • Often used to reduce stress during caregiving activities and medical procedures such as mouth care,  nappy (diaper) changing or tube feeding. However, there is a certain risk for spontaneous rotation to lying on the tummy.

 

Babies have two main sleep states: deep or quiet sleep and active or light sleep, also known as rapid eye movement (REM). Additionally, they go through different behavioural states, ranging from drowsiness to being actively awake and fussy to crying.

 

It might be a bit tricky to know exactly what state your baby is in, but recognising these behavioural states can help you understand when your baby is ready for interaction and when it is time to help them get some rest.

 

Deep/Quiet sleep:

 

  • Your baby moves very rarely, with occasional startles or mouthing.
  • Breathing is slower and more regular.

 

Light/Active sleep:

 

  • Your baby's eyes are closed, but you may notice slow rolling eye movements (REM).
  • Breathing is faster and more irregular.
  • Briefly opening eyes or making sucking movements may occur.

 

Drowsy:

 

  • Your baby's eyes may open and close with a shiny appearance.
  • This is a transitional stage between waking up and falling back to sleep.
  • Caregivers can support the baby to fall back asleep or gently wake them for care procedures.

 

Quietly awake:

 

  • Your baby has wide-open eyes with a bright look and a relaxed facial expression.
  • A good time for care procedures like feeds or skin-to-skin contact.

 

Actively awake:

 

  • Your baby's eyes can be open or closed, but they may seem restless or troubled.
  • Your baby needs help settling and coping with the environment.

 

Crying:

 

  • The most stressful state for the baby, parents, and the NICU care team.
  • Generalised movement, agitated sounds, grimacing, and crying expression.
  • Breathing may be irregular, and skin colour can change.

 

Several factors affect your baby's sleep in the neonatal unit, such as timing care around their alertness, adjusting noise and light for a calm environment, ensuring comfortable positioning, and feeding based on your baby’s needs.

 

Parents play a vital role in helping their baby's sleep. They can settle their baby to sleep effectively. Skin-to-skin care and the parents' voice also contribute to promoting sleep. The NICU care team can guide you in supporting your baby for restful sleep.