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Neonatal admission: what to expect?
What is preterm birth?
Neonatal care across the globe
Preterm birth: risk factors and causes
Modifiable lifestyle choices
Medical conditions
Sociodemographic factors
Preterm labour: signs and symptoms
Signs & symptoms
Prevention of preterm birth
Antenatal care and monitoring
High-risk pregnancy
How to prepare for the NICU
Clinic levels
Visit the neonatal unit
Connect with other parents
Pack your hospital bag
Find support
Delivery and neonatal admission
Vaginal delivery or caesarean section
Delivery of a preterm baby or multiples
Stabilisation and resuscitation
Immediate skin-to-skin care
Fathers’/partners’ role
Transfer to the NICU
Possible complications
Lung
Heart
Brain
Temperature control
Kidney
Digestion
Blood glucose
Infections
Another pregnancy
What is the NICU?
The parents' role in the NICU
Your role in the NICU
Feeding your baby
Changing your baby's nappy
Washing your baby in the NICU
Having a sibling in the NICU
Parenting multiples in the NICU
Support and self-care
In the NICU
NICU care team
NICU equipment
Tests and procedures
Feeding procedures
Vaccination
Uncertainty, loss, and bereavement
Making critical care decisions
Palliative care
Coping with loss
Coping with the loss of multiple babies
Preparing to go home
When can your baby go home?
Getting organised: what to expect
Checklist: Preemie clothing and supplies
Preparing siblings for the new baby
Transitioning from the neonatal unit to home
Preparing for discharge
Going home by car
Going home on oxygen
Follow-up appointments
Preemie care at home
Challenges & support
Feeding your baby at home
Bathing your preterm baby
Your baby's sleep
Signs that your baby might be unwell
Medical care and equipment
Suitability of the environment
Pets
Visits from family and friends
Follow-up care after the neonatal unit
Medical support when you come home
Early intervention
Immunisation
Stimulation
Physiotherapy and other therapeutic support
Preemie development
Adjusted age development
Preemie growth and weight
Preemie milestones
Preterm birth: long-term impact
Kindergarten and pre-school
Primary school and high school
Long-term health effects
Social experiences and relationships
Involving family and friends
Support groups and organisations
Coping with worry
How you might be feeling
What you can do to help
Follow-up visits after giving birth
Financial information
Child support
Maternity and parental leave
Health insurance and social services
Charities
Stories from our community
Downloads
Glossary
Parent Support Groups
Details

Welcome to your neonatal encyclopedia

Parent organisations in your region

Africa

The Americas

Asia

Europe

Oceania

"Parents of preterm and sick babies are often overwhelmed, isolated, and unsure where to turn for help. As a mother who went through this rollercoaster journey in 1997, I know how difficult those weeks and months can be. We hope Neopedia brings clarity, comfort, and connection to those who need it most."

Silke Mader

Chairwoman of the Executive Board and Member of the Trustee Board, Global Foundation for the Care of Newborn Infants (GFCNI)

Shared experiences: stories from our community

Sandra and Jens’s story of Carlota’s arrival: A testimony of strength, support, and love

Sandra and Jens’s story of Carlota’s arrival: A testimony of strength, support, and love

When Sandra suffered a serious injury during pregnancy, doctors said continuing would be nearly impossible. But with strength, support, and hope, Carlota arrived early - and well.
Anca’s story of resilience and hope after extreme prematurity

Anca’s story of resilience and hope after extreme prematurity

When Anca gave birth at just 28 weeks, her daughter weighed only 550 grams — the beginning of an intense journey marked by medical battles, uncertainty, and hope. This is a story of resilience, love, and the fight for a future against all odds.
Elka's story of strength and summit dreams

Elka's story of strength and summit dreams

Born prematurely at just 29 weeks, Elka defied the odds from her very first breath. At 11 years old, she reached the summit of Mt Kilimanjaro, showing the world just how far determination can take you.
Gerlinde’s story of holding on and letting hope lead

Gerlinde’s story of holding on and letting hope lead

When her twin girls were born at 27 weeks, Gerlinde stepped into a world of machines, medical terms, and unanswered questions. Their story is one of endurance, unwavering love, and the quiet strength found in everyday battles.

Neopedia is created by GFCNI in collaboration with parent organisations and reviewed by medical experts worldwide.

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Neopedia was made possible through the dedication of the following parent organisations worldwide:

GFCNI

Global Foundation for the Care of Newborn Infants

 

GFCNI works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world.

 

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Neopedia is your neonatal care encyclopedia about prematurity, hospitalisation, and beyond. 

 

Neopedia offers information and advice of a general nature, which are not a substitute for professional medical consultation or treatment by healthcare professionals. Always consult your healthcare provider for proper diagnosis and treatment. 

 

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