Ileana, mother of Alex born at 27 weeks, 980 grammes.
This story was sent to us by Romanian parent organsiation ARNIS.
Raising a premature baby who grew into a child with special needs has profoundly shaped our lives. Our story began at 27 weeks of pregnancy, with a baby weighing just 980 grammes. We were suddenly thrust into an unfamiliar world, and since 2014, we have learned to cherish every small milestone we’ve achieved along the way.
We have faced challenges such as feeding difficulties, cerebral palsy, spasticity, and problems with balance. For over a decade now, we have relied on various therapies to support both motor and psychological development.
Integrating a child with such complex needs into mainstream education is far from easy, and society is still not fully prepared to accept and support these children. As parents, our goal is to help our child become as independent as possible.
The greatest progress we’ve made has come from the love and effort we’ve poured into this journey. It has been a path filled with hope, faith, and love.
Ileana, mother of Alex born at 27 weeks, 980 grammes.
This story was sent to us by Romanian parent organsiation ARNIS.
GFCNI
Global Foundation for the Care of Newborn Infants
GFCNI works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world.
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